AIDEN WAS BORN WITH SHONES COMPLEX/HLHS. (HALF OF HIS HEART WAS UNDERDEVELOPED) HE HAS HAD 2 OF THE 3 STAGE OPEN HEART SURGERIES THAT HE NEEDS. HIS LIFE EXPECTANCY IS UNKNOWN & ONE DAY HE MAY NEED A HEART TRANSPLANT. ALTHOUGH AIDEN HAS A BIG ROAD AHEAD OF HIM, HE IS DOING EXTRAORDINARILY WELL. WE ARE SO BLESSED & GRATEFUL TO HAVE HIM HERE WITH US.















Thursday, May 21, 2009

cardiology appointment

Today Aiden saw Dr Cocalis for his 6 month follow up. He was so good during his echo. He stayed pretty quiet & very still during the whole thing! It went so much smoother than I expected!
His O2 sats were in the low 90's which Dr Cocalis suspected some collaterals as soon as he saw his numbers and during the echo he did see a couple of them. He says that the only concern would be if he got "too pink" but that he would rather him be a little too pink than a little too blue. He says there is nothing too worry about or to look for as far as symptoms and such and that they will just remove them during the Fontan or when he has a Cath if they need to. Otherwise...his heart function is Great, his EKG was normal & he finally came off of the lasix! Now we are down to just Enalapril and aspirin! Dr Cocalis and I also talked a little about the Fontan & the future. We will see him again in 6 months!

Another pic I had to share...Believe it or not this silly boy is laughing! He has this new little laugh... when we laugh he cracks up, crinkles his nose (his whole face really) and squints his eyes. It is so funny! I tried to get a shot of him in full on action, but it's so hard to get one in time!

1 comment:

allison said...

Good news! I wish Josh did a good job like that during his echos.

I love the new laugh! So cute! By the way Josh has the same shirt & shoes as Aiden in that pic! How funny!